Other than a couple of questions here and there on social media, I haven’t really mentioned the chronic pain that I have been experiencing for the last 2.5 years.
It started in the summer of 2010, and I originally thought that I had a herniated or slipped disc in my neck/back. By the time the cooler weather came around, the pain was not as bad, so I kind of wrote it off as changes in the weather, humidity, and in my body, as I approached 40.
The problem is, the pain never fully went away. It retreated occasionally, but never completely, and never for long.
During this time, there were also increases in other issues, such as skin, scalp and hair issues (eg: eczema, hair thinning) and slight weight gain. All of these have ‘normal’ reasons, such as approaching and passing 40, allergies, diet…
I’ve spent many days and nights wearing hand and wrist braces, thinking it was just really bad carpal tunnel.
I’ve changed to a standing desk, thinking it might just be really bad tension in my muscles caused by how I sit at the computer.
I’ve upped my exercise, thinking it might be rheumatoid arthritis and that it was best to keep moving.
I’ve tried OTC pain relievers, thinking if I could just get some relief, my body might heal itself.
I’ve added various vitamins to my diet, thinking it might be perimenopause.
I’ve gone shampoo-free, hoping to alleviate scalp issues.
I’ve changed my diet, trying my best to follow an anti-inflammatory diet, thinking it might be a food allergy, issues with wheat/gluten…
Until two months ago, I didn’t have health insurance, so I’ve prayed daily for healing and (/or, at the very least) comfort. I’ve laid awake many nights worried about what was wrong. It’s become a part of my daily life.
Last year, at Randy’s prompting, I started keeping a journal – tracking the pain: the dates, levels, locations. We knew that when we saw a doctor, in order to have a good grasp on things, and help along a diagnosis, we needed to have a sense of when things were happening.
Eventually a pattern emerged.
Almost three years ago, I got a Mirena IUD. It basically stopped my periods, but in my journaling, I realized that the pain always increased around my usual cycle.
It didn’t make sense to me, at first, that they might be related, but I searched the internet for correlations, trying to figure out if the IUD created symptoms, or exacerbated symptoms that were created by other issues.
In other words: was I already struggling with health issues? Or was it possible that the IUD was creating them?
My searches didn’t turn up much. I still felt at a loss to explain what would have brought on such a sudden, chronic pain.
In the last few months, I’ve realized that my search terms were off. I changed my search from searching the internet for “IUD chronic pain”, (which brought up a bajillion posts on chronic pelvic pain) and changed my search to “IUD autoimmune issues”.
And I found that there are many women who have been dealing with the same types of pains and issues. Some of them found great relief upon the removal of the IUD, many, after having had testing (and even possible diagnoses) for RA, MS, and many other autoimmune diseases.
After a few months of a mild decrease in severity, my pain has been back in full-force for the last few weeks, and the last few days, it has been worse than I can remember in awhile.
I’m making an appointment with my doctor, and I’m planning on having my IUD removed. It may turn out not be the root cause of my pain, but it is the simplest test I can do at this time.
Honestly, I’m hoping that it really IS just the IUD.